Where have I been?!


I haven't blogged for ten days!! That's a long time for me to go without blogging.
You see, I've not been very well. I suffer with a rare brain disease called intracranial idiopathic hypertension. It's where the pressure/fluid around my brain builds up and causes horrendous, chronic headaches and pain in my head and eyes. My vision goes all blurry when it flares up and makes very, very sick. The left side of my body goes numb and I suffer horrendously with pins and needles, right up my arms and legs. That could be a side effect from the meds though. It also effects my ears, like my ears feel blocked when the IIH flares up. The symptoms are similar to those of a brain tumor. In fact, when I first started suffering with headaches, that is what the doctors thought it was. Thankfully it isn't a brain tumor and I am SO grateful for that. (See it could be so much worse!) When the IIH flares up, I literally can not do anything. It's horrible. It is so hard to put into words how poorly I was, it's hard to explain. There is no cure. I know that I need another lumbar puncture (spinal tap) to drain the extra fluid from around my brain, I need my doctor to contact the neurologist and refer me. Again. I've suffered with this since 2010, which is when I was diagnosed. I don't want to go on about it but I knew I needed to mention it because I haven't been blogging for the above reason.
My head isn't as bad now, although I always have a constant headache and dull ache behind my eyes, it has calmed down compared to what it was like. It can flare up at anytime without warning which makes it hard to plan things. Anxiety has been pretty bad too. But that's a whole other story and I don't want to go into it now. Thinking about it makes me even more anxious!

Spring walk @ ups and downs smiles and frowns

I'd like to be able to say we had a good half term. Except, I was ill for 85% of it. The kids had fun though, we just hung out at home, playing board games, watching movies and netflix and what not. They did go to the park with there friends and played out the front on there scooters and bikes. My family visisted and they had a fab Easter and got soooo many Easter eggs! We had a couple of afternoons with lovely warm weather which we spent in the garden (When my headache wasn't too bad). They've now all settled back into the school routine and my head is slowly getting better. I'm glad we managed to make the most of the weather and get out before I was poorly. We enjoyed a really lovely spring walk on Good Friday.


I also had my twelve month house check (because this house was a new build when I moved in, the builders had to come back to check all was well) which went perfectly, I can finally start decorating and hang pictures and put shelves up! I am SO excited about that! I need to start saving. I invested in a steam mop and oh my goodness, how did I ever cope without one? It's the best thing ever, haha.

Charlie got into the high school, I had to appeal but thankfully a space become available so I no longer need to appeal! That's a HUGE relief. He is super excited! Not so excited for the SATS exams that are coming up though... I know he'll do his absolute best and I'm already very proud!
The boys both have new, smart hair cuts, there hair grows SO fast! It'll need cutting again in a couple of weeks. Thankfully we have a barbers bear by who are very, very good! Just as well because I can not cut hair, haha.

Ups & Downs, Smiles & Frowns

Ellie has signed up for choir which I am certain she will enjoy. I received a letter about Ellie's dental referral, I need to schedule that appointment tomorrow.

Harry is doing great at school. There's not much to report really. Harry has some kind of something wrong with his finger and finger nail so I need to make him an appointment for that. It looks quite painful. No idea what he's done, he doesn't know either. Personally I think it's where he's been biting his nails! I tell him not to but it's a habit that is hard to break. We're working on that. If anyone has any tips on how to stop biting nails, I'm all ears :) 

Well, this is a pretty good summary of what's been going on. I am hoping I can catch up on blogging this week, depending on how I feel.

What have you been up to lately? I hope you're all well and had a great Easter!

Sarah xXx
Rhyming with Wine
Best of Worst
Let's Talk Mommy
A Cornish Mum

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  1. Oh gosh you poor thing - this sounds really stressful on all accounts and it's SO rubbish feeling rubbish and even more rubbish feeling rubbish when you have kids to look after. I wish I could wave a magic wand for you and make it all go away. Your kids are gorgeous btw :).

  2. Oh poor you, that sounds awful. I hope you're feeling better now. Looks like the kids had a good time. I'm a chronic nailbiter myself. Had limited success with the horrible tasting nail polish but I still chew when anxious.


  3. Oh, it sounds like you've had a really rough time recently. Glad you are back to blogging though, sometimes I find it really helps to focus stuff when you do a blog post and write it all down. Looks like you've all had a good easter despite your illness #fartglitter

  4. Oh gosh! I had no idea. How awful. I'm glad you are feeling a little better now.
    It sounds like you have had a lot going on...Take care x

  5. I feel so sorry for you, it must be awful living with an illness like this. Your kids look great, I bet you are so proud of them!

  6. I'm so sorry to hear you've been feeling poorly, but as you say, it could be a lot worse! Glad to hear the kids had a great Easter break nonetheless. Yay for house decorating too! :)

  7. Good to have you back. Sorry to hear about you feeling poorly. Not been feeling well myself so I can relate.

  8. I have a steam mop and can't work out if it's even doing anything! The steam is cold?!??!! How can this be doing anything haha. Being ill on holidays are the worst :( x

  9. I am so sorry you are going through this! I can not imagine how awful it must be for you!

    Sending you virtual hugs

    Laura x xx

  10. Oh I am so sorry to hear you suffer with this - it must be terrible. I hope you are feeling better now. Kaz x

  11. Sorry to hear you suffer with this. Hope you're feeling better now x

  12. So sorry you have been feeling poorly it makes looking after kids and carrying on so hard #Sharewithme

  13. Sorry to hear you have been poorly, I hope you are feeling better. Good news on Charlie getting into the high school you wanted - it can be such a stressful time. Lovely pictures x

  14. Aw hun I had no idea I really hope that you feel a little better, I know it is a lifelong condition but you are so brave to do as much as you do. Thank god it is not a tumor but I admire how much you do even though you are in so much pain all the time. Hugs xxxx

  15. Sorry to hear you have been unwell! That must have been odd not blogging for ages. The kids look like they have been busy though and done loads! Hope you scoffed lots of chocolate!! Thanks for sharing with #bestandworst x

  16. I'm so glad you're feeling better. Sounds like you've had a rough couple of weeks! #SharewithMe

  17. Oh gosh, so sorry to hear that you've been poorly. I hope you are back to your usual self sooN!

  18. My mum suffers with this. 15 years ago she had a shunt (i think its called that!) put in her head which helps drain the fluid into a pipe down into her stomach. She had loaads of lumber punctures before they decided to finally do that op. She has been fine ever since. Althoigh she is very sensitive to light as it did effect her eyes a bit. I hope you feel better soon xx


  19. Oh bless you hunny must be so hard when it flares up to just be you let alone being mommy and don't worry about the blog it will be here when you are well again to share your thoughts, life and ongoings. I hope you are feeling much better. Thanks for linking up to Share With Me #sharewithme

  20. This sounds awful bless you, I really hope they find some way to make things better for you lovely!

    Thanks for linking up to #PicknMix hopefully see you there again tomorrow

    Stevie x

  21. Sorry youve been unwell again lovely I hope you're feeling better now and your referrals don't take too long and the children's appointments they need. Glad you managed to enjoy some of the holidays hope you're better for the May half term xx


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